Professor Mom
Rough patch
One day last week I was waiting in line at Starbucks when a tall woman approached me.
"Excuse me," she said. "Didn't I come to a party at your house maybe two years ago?"
I knew right away that she had. Although I wouldn't have picked her out from all the other people in the coffee line, when she made the connection, I saw it, too. Two years ago we'd hosted a playdate/party for our local Asperger's Parenting group and she'd been there with her young son.
We chatted while we waited for our drinks.
"How is L. doing?" she asked.
I hesitated, thinking about how to best sum up our lives at that point. "We're going through a rough patch right now," I told her. And I saw in her eyes that she knew exactly what I meant. "Rough patch" is code for the-bottom-has-dropped-out-of-our-world-right-now-and-things-are-unbearably-difficult. Only parents of other kids with AS can truly understand the meaning of the words "rough patch." If you tell other parents those same words they just nod, and think they understand--supplying their own sense of meaning to the words, but they often never come close to understanding what a rough patch really looks like.
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Last Monday was an almost unspeakably awful day. Tuesday was, too. Yet the awfulness of those days was nothing compared to how unspeakably and unimaginably awful life had become in Haiti, in a place far away.
I drove L. to a therapy appointment on Tuesday.
I cried a little in front of the therapist, all the tension and stress from the beginning of the week mingled with the weight of the tragedy in Haiti, and the awfulness of life at that moment.
But I felt selfish and self-centered for being consumed by the bad days in my world, when there were so many others suffering in such unimaginable ways in their world--in our world.
And I felt angry with L. for making me feel selfish, which didn't make me feel any better, I can tell you.
There is little that's more painful to me as a parent than the feeling that my own child is unreachable--at the end of some winding tunnel, far away and I can't connect, or reconnect, even. It's like living that bad dream, the one where you can't find your child, or you see them separated from you, and you reach out, but they are gone.
Still, there are parents in Haiti suffering real loss, physical loss, devastating loss. Parents who reached out to their own children, only to see them slip away. Parents who pulled their children from the rubble, alive, only to have them die in their arms days later because no help could be found.
Unimaginable.
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On Thursday last week I found myself at the craft store, shopping for materials for the snow globe craft for T.'s party. I needed a piece of paper to write down something, but couldn't find one in my bag. Instead, I pulled out my new Christmas toy, my iPod, so I could use the notepad. I tapped the Notes icon and the little yellow lined pad came up--surprisingly, there was already one note there:
I love you Mama,
L.
I looked at the date: Tuesday, January 12th. He must have typed the note when I'd given him my iPod to play with while we waited for his appointment. My eyes filled with tears and there, in the craft store, I tapped a note back:
I love you L.,
Mama







Comments
That is so sweet and exactly the sort of surprise you were in need of, I'd imagine.
That made me cry. At least there are those little reminders in the midst of the rough patch that things can be better.
I think we have to allow ourselves our own pain, not to dismiss the horrible suffering of others, but to acknowledge that our own feelings are valid. It can be easy to tell oneself that there's so much worse than Asperger's, but that doesn't make it any easier when in the middle of a rough patch.
It's hard sometimes not to feel self-centered when other people are going through such tragedy--but I think you're right, we have to work through our own troubles as they are happening, and not take on the guilt as well.
How great - a little note from your L. Hold on to that, even when you feel like's he's out of your reach. He's there. Seeing you in tears, seeing you in a vulnerable moment, that was probably good for your boy. It's good for us all to know that about each other. Even if someone else's pain is far worse than our own, we all have our own difficulties. Mine yesterday were simply the stress of too many things to do in one day. I felt selfish being so grumpy about it too, but I guess we all have our challenges. Big or small.
We've had a rough patch (quite different than yours) with our girl lately, a new wave of emotions and how she's expressing them and I've found myself very unsure of how to handle it, parenting this 6 1/2 year old for the very first time. It feels like starting all over again and I've been quite unsure of myself!
Honestly, I think parenting is one of the most frightening things. I used to think having an infant/toddler was difficult, but it pales in comparison to trying to negotiate the emotional/physical minefield of your school-aged child!
For all the time I have spent teaching teens and tweens, I am dreading parenting that age. I'll even admit that I'm glad I'll have the two boys. And I think there's a lot to be said for working up gradually to these ages!
I read a post the other day by the mother of very young children and she was terribly offended by any suggestion that parenting toddlers was easier than parenting older kids - but every parent of older kids that I know would sigh and roll their eyes, since kids' problems just tend to get harder and make our hearts heavier as time goes by.
Rough patches are awful. But they do lift, eventually. Wishing you easier days with L.
I think you don't realize what you are in for until your kids get older--then you wish for those easy toddler days of potty training and food battles!
Oh, what a good boy you have there. I'm weepy myself.
Amie
Thanks, Amie.